How long did it take you to get an Idiopathic Hypersomnia diagnosis?
How many years? Were you surprised when you were diagnosed?
25 + years. I wasn’t surprised. I was relieved. I felt vindicated, excited, and hopeful. After 25 years of being dismissed and gaslighted, I was thrilled to give it a name. It having a name confirmed what I already knew - I was not making this up.
I mentioned it to a doctor who finally referred me to a sleep specialist how ultimately referred me to a Pulmonologist. My Pulmonologist “diagnosed” me in 30 seconds. I’m on a treatment. I’m still searching for a good treatment. I’m hopeful I'm glad both doctors took you seriously and investigated further. I hope you find a treatment plan that really helps and that better solutions come along in these next few years. - Lori (Team Member)
