You Are Not Alone: Real Voices from the Idiopathic Hypersomnia CommunitySometimes the most powerful thing about a community isn't an article or an expert opinion—it's seeing your own experience reflected in someone...reactionscomments
Shame is a Liar and Cannot Stay HereRecently I was considering going on a trip with a friend group. One of my friends in the group said, "Did you...reactions3comments
I'm Not Lazy, I Have a Sleep Disorder (Idiopathic Hypersomnia)It's extremely challenging to go at a slow pace when the whole world seems to move at breakneck speed. One of the...reactions1comment
Accepting Life With Idiopathic Hypersomnia (IH)After 25 years of symptoms, I was relieved to finally be diagnosed with idiopathic hypersomnia (IH). There was finally confirmation that I...reactionscomments
Idiopathic Hypersomnia and AI: How Are You Using It for Your Health?Something has shifted in the last couple of years. A late-night symptom search now sometimes starts with an AI summary before it...reactionscomments
Your Voice Shapes This IH Community: 5 Polls We'd Love You to Weigh In OnIf you've ever scrolled past one of our polls thinking "I'll do that later" — this is your later. Every response helps...reactions3comments
Getting a Second OpinionA diagnosis that does not feel right or a misdiagnosis can be overwhelming, especially with a condition like idiopathic hypersomnia (IH). You...reactionscomments
Finding Credible Health InformationThere is a lot of health information available on the internet these days. From personal blogs and online magazines to government websites...reactionscomments
Self-Advocacy Didn’t Come Naturally, But It’s A Skill I’m Determined To LearnI am sitting in the examination room with the paper-thin gown on. My toes are freezing and it is hard for me...reactionscomments
Traveling Overseas: Can You Travel With Idiopathic Hypersomnia?I traveled overseas for the first time in my life! I was super nervous with everything going on in the world to...reactionscomments
My Workplace Accommodation Was DeniedI felt extremely vulnerable when I requested a workplace accommodation. I feared that my employer would not understand idiopathic hypersomnia and think...reactionscomments
I Need A Workplace Accommodation, Now What?I thought I needed to “try harder” to stay awake. I tried everything. More sleep, more caffeine, less caffeine, better time management...reactionscomments
Sip at Your Own Pace: The Idiopathic-Hypersomnia.net June Giveaway! (Now Closed)The Sip at Your Own Pace: Idiopathic-Hypersomnia.net June Giveaway is now closed. Thank you for your interest! If you have idiopathic hypersomnia...reactions1comment
The IH Spectrum: What Does Your Idiopathic Hypersomnia Look Like?Living with idiopathic hypersomnia (IH) means navigating a world that doesn’t quite understand what "tired" actually means for us. But even within...reactions3comments
IH in EducationWhen I look back on my life, I can easily identify moments when my perplexing sleepiness was actually due to a then-undiagnosed...reactionscomments
Book The Flight! A Sleepy Traveler’s Guide To Solo TravelA few friends and I were planning a girls' trip to a resort in the Bahamas. For months, we discussed every detail...reactionscomments
Emotional Support AnimalsWhen I was first diagnosed I thought about getting a service dog. At the time, it sounded nice to have a dog...reactions3comments
Is There an Ideal Bedtime?Is there such a thing as an ideal bedtime? Or is there an optimal quantity and quality of sleep that each person...reactionscomments
3 Things I Will No Longer Apologize ForA few years ago, while developing a workshop on effective communication during conflict, I stressed the importance of accountability and apologizing. Saying...reactionscomments
The Artist: Finding Meaning In The Pain of Idiopathic HypersomniaIn June I fulfilled a lifelong dream of visiting the Frida Kahlo museum in Mexico City. Frida Kahlo was a Mexican artist...reactionscomments
