What are some lingering questions you have?
All questions are safe here. What IH-related topics would you like to know more about? Please post your question here, and our health leaders and community members will do their best to answer!
Thank you.
I have one more question:
Anyone have an idea of how soon the first Orexin Agonist drug will be on the market for the general public in the US?Hi
. I haven't seen any good estimates, but it's getting super close. This is the latest update I could find: https://www.takeda.com/newsroom/newsreleases/2026/fda-accepts-nda-priority-review-oveporexton-narcolepsy-type-1/. - Lori (Team Member)
Experience with xyrem
Hi
. Hopefully, you will get feedback from others in the community and from some of our health leaders, but I thought I would share some articles with you from our narcolepsy community since it's a holiday weekend and activity might be slow here. This is an article from a health leader who found her excessive daytime sleepiness first decreased and then increased with Xyrem: https://narcolepsy.sleep-disorders.net/living/xyrem-expectations. Here is another from someone who had a positive experience overall: https://narcolepsy.sleep-disorders.net/living/nighttime-sleep. I hope this helps. Best wishes. - Lori (Team Member)
