Active yesterdayIf IH had a mascot, what would it be?In our poll, we offered options: - A snooze button - A sloth - A phone stuck at 1% battery - A...reactionsrepliesAwareness
Active 5 days agoHow has IH affected your work and career? Has it hindered your career growth? Did you choose a career that would feel more IH-friendly? Do you tell your employer about...reactions5repliesWork & Employment
Fill in the blank: The most frustrating part of dating with Idiopathic Hypersomnia is ____.Fill in the blank....reactions1replyIntimacy & Relationships
Fill in the blank: The hardest part of my IH treatment has been ___."What has been the hardest part of managing your IH treatment? Fill in the blank....reactions9repliesTreatment
What can I do to get my husband to understand that when I sit with him on the couch and fall asleep...He enjoys waking me up I'm sure and even acts like he's disgusted by it. He's even been to my neurology appointments...reactions2repliesAwarenessCopingDepression
Welcome! Please Introduce YourselfWelcome to our community! We’d love to learn a little about what has brought you here. Share as much or as little...reactions17repliesAwareness
Idiopathic Hypersomnia "Life Hacks"In our IH Story post (https://idiopathic-hypersomnia.net/living/real-patient-stories) we offered an option for those not ready just yet to share their full IH story...reactionsrepliesTips & Advice
A good laugh - I found help with EDSI have not taken a nap in 3 days. Why? How, you ask lol? My kid got his drivers license 😂. I’m...reactions2repliesCoping
How long did it take you to get an Idiopathic Hypersomnia diagnosis?How many years? Were you surprised when you were diagnosed?...reactions27repliesDiagnosis
IH Day is June 13thIm presenting at the Hypersomnia Foundation “Beyond Sleep” Conference June 12-14th. Virtual Attendance is free!!! Do you have anything planned for our...reactionsrepliesAwareness