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On meds but bearly lifeing

I've had issues for years I was told I had narcolepsy and IH and then I did a sleep study about 6...

If IH had a mascot, what would it be?

In our poll, we offered options: - A snooze button - A sloth - A phone stuck at 1% battery - A...

How has IH affected your work and career?

Has it hindered your career growth? Did you choose a career that would feel more IH-friendly? Do you tell your employer about...

Fill in the blank: The most frustrating part of dating with Idiopathic Hypersomnia is ____.

Fill in the blank....

Fill in the blank: The hardest part of my IH treatment has been ___."

What has been the hardest part of managing your IH treatment? Fill in the blank....

What can I do to get my husband to understand that when I sit with him on the couch and fall asleep...

He enjoys waking me up I'm sure and even acts like he's disgusted by it. He's even been to my neurology appointments...

Welcome! Please Introduce Yourself

Welcome to our community! We’d love to learn a little about what has brought you here. Share as much or as little...

Idiopathic Hypersomnia "Life Hacks"

In our IH Story post (https://idiopathic-hypersomnia.net/living/real-patient-stories) we offered an option for those not ready just yet to share their full IH story...

A good laugh - I found help with EDS

I have not taken a nap in 3 days. Why? How, you ask lol? My kid got his drivers license 😂. I’m...

How long did it take you to get an Idiopathic Hypersomnia diagnosis?

How many years? Were you surprised when you were diagnosed?...

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