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Idiopathic Hypersomnia

Hello, I am Virginia. I was diagnosed about 12 years ago with IH. I'm supposed to use a machine but never got...

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Welcome! Please Introduce Yourself

Welcome to our community! We’d love to learn a little about what has brought you here. Share as much or as little...

Active 3 days ago

How long did it take you to get an Idiopathic Hypersomnia diagnosis?

How many years? Were you surprised when you were diagnosed?...

Trying to make an appointment

Why is it so hard to get an appointment with a sleep doctor? I had an appt that took three months waiting...

How has IH affected your work and career?

Has it hindered your career growth? Did you choose a career that would feel more IH-friendly? Do you tell your employer about...

What are some of your funniest IH brain fog moments?

We’ve all had those moments where IH brain fog caused us to do something completely hilarious, baffling, or slightly embarrassing. Whether it's...

Men have it too

I noticed that mostly women post about this. But I can tell you that men experience it also. Over 50 years here....

IH Day is June 13th

Im presenting at the Hypersomnia Foundation “Beyond Sleep” Conference June 12-14th. Virtual Attendance is free!!! Do you have anything planned for our...

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What do you wish others knew about IH?

There are plenty of misconceptions and a lot of unknown information about idiopathic hypersomnia. What's something you wish people understood about the...

What are some lingering questions you have?

All questions are safe here. What IH-related topics would you like to know more about? Please post your question here, and our...

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